4.4 • 3.1K Ratings
🗓️ 14 August 2023
⏱️ 62 minutes
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0:00.0 | You can get angry and get into a firefight, but you don't get anywhere by doing that, but |
0:10.6 | you get a lot done when you educate properly and you give them information and you show |
0:16.7 | compassion and understanding. |
0:20.7 | Jose Ramirez, Jr. is the author of the memoir, Squint, My Journey with Lapercy, which leads |
0:28.2 | readers through the mystery illness that took over his life as a teenager in the 1960s, |
0:35.3 | his diagnosis at age 20, and the years he spent at the only hospital for people with |
0:41.3 | Lapercy or Hanson's disease in the United States. |
0:46.3 | Carville, as the facility was called, housed hundreds of patients with Hansons, but it was |
0:53.6 | far more than a hospital. |
0:56.0 | It was a fully contained world with churches, recreational sports fields, libraries, a bank, |
1:03.5 | a post office, and a cemetery. |
1:06.9 | But this world was incredibly isolating and often demeaning, leading many of the patients |
1:13.5 | of all ages and races to form supportive communities within its barbed wire walls. |
1:21.3 | After his discharge, Jose traveled the world as a social worker and advocate for people |
1:27.1 | with Hanson's disease and has held leadership positions in many advocacy groups, including |
1:33.5 | the American Lapercy Mission and Idea, an international organization of people affected |
1:40.1 | by Lapercy. |
1:42.1 | Because new cases have been discovered in Florida and the media, stand-up comics, memes, and |
1:48.1 | quippy tweets have yet again been contributing to damaging misinformation, Jose will share |
1:54.6 | his devastating and uplifting journey as he talks with us about the misunderstandings |
2:00.6 | around this sensationalized, mythic, biblical disease that 97% of people are naturally immune |
2:09.2 | to and can now be cured quickly with the right medication. |
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