What a life-changing cystic fibrosis drug teaches us about translating science into health

America Dissected

Incision Media LLC

Politics, News, Society & Culture

4.6 • 4.4K Ratings

🗓️ 27 August 2024

⏱️ 51 minutes

🔗️ Recording | iTunes | RSS

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Summary

You’ve probably never heard of Trikafta — unless you or someone you love lives with cystic fibrosis. The drug has fundamentally changed cystic fibrosis care, extending life expectancy by decades. But the drug costs $326,000 a year — and requires people to be on it for life. Abdul reflects on the central challenge at promoting life-saving innovations that the people who need them can afford. Then he interviews Dr. Michael Boyle, President and CEO of the Cystic Fibrosis Foundation about the science behind Trikafta and the work to make it universally affordable. This show would not be possible without the generous support of our sponsors. America Dissected invites you to check them out. This episode was brought to you by: Marguerite Casey Foundation: Sign up for their new Summer School program at CaseyGrants.org/SummerSchool. Rhone: Upgrade your closet with Rhone and use AD to save 20% at https://www.rhone.com/AD.

Transcript

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0:00.0	America Disected is brought to you by Marguerite Casey Foundation.
0:03.0	While some folks worry about the threat of fascism in the United States,
0:06.0	many are already living through it.
0:08.0	Across the country, organizers are being labeled terrorists for fighting for the sanctity of life in Palestine, the health of our planet
0:14.3	at standing rock and against the expansion of the prison industrial complex at Cop City.
0:18.8	Stakes could not be higher and those who care about freedom, especially funders.
0:22.5	Need to understand the history of how we got here
0:24.4	and the role we can play in helping fuel multiracial coalitions
0:27.6	that can fight the forces of fascism.
0:29.5	Be part of the solution.
0:30.6	Register now to join Mark R Casey Foundation's Summer School,
0:33.4	Building a People and Planet centered future.
0:36.1	Together, summer school participants will hear from visionary organizers, activists,
0:40.0	scholars, and experts and get political education that has the power to spark the
0:44.1	solidarity essential for creating a future focused on the well-being of people and the
0:48.0	planet. Sign up today to join Marguerite Casey Foundation summer school at
0:51.6	Casey grants.org slash summer school That C-A-S-E-Y-G-R-A-T-S-O-O-O-S-S-S-S-S-S-S-S-S-S-S-S-S-S-S-S-S-S-S-S-S-S-S-S-S-S-S-S-E-S-S-E-E-S-S-S-S-T-T-G-G-G-T The FDA approves a new COVID-19 booster ahead of the Labor Day holiday.
1:12.2	Vice President Kamala Harris proposes a plan to eliminate medical debt nationwide.
1:17.0	A 10-month-old child in Gaza has contracted its first case of polio in 25 years.
1:22.0	This is America
1:23.4	DeSected. I'm your host Dr. Abdul Alsayah.
1:25.6	For most of us who go into public health or health care, there's a story, a spark.
	...

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