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Revisiting 'The Mother Who Changed: A Story of Dementia'

The Daily

The New York Times

News, Daily News

4.597.8K Ratings

🗓️ 12 May 2024

⏱️ 61 minutes

🧾️ Download transcript

Summary

Earlier this year, we shared the story of one family’s dispute over a loved one with dementia. That story, originally reported in The New York Times Magazine by Katie Engelhart, won the Pulitzer Prize for feature writing this past week. Today, we're revisiting Katie’s story – and the question at the heart of it: When cognitive decline changes people, should we respect their new desires?

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0:00.0

Hi everybody it's Sabrina. I'm here because today we're doing something special.

0:06.3

We're revisiting a show from earlier this year, from January. The story at the

0:12.2

center of this episode, which was first a magazine feature by reporter

0:15.9

Katie Engelhart, it just won a Pulitzer Prize for feature writing this past week.

0:21.9

Our team here at the Daily, including producers Luke Fender Plouge,

0:25.6

Claire Tinous Sketter, Diana Wynne, and deputy editor Michael Benoit worked with Katie to tell that story in audio.

0:34.0

Both versions, we think, shed powerful human light

0:37.6

on a disease that affects so many people.

0:41.0

Dementia.

0:42.4

So we wanted to resurface it for all of you.

0:45.0

Hope you'll give it a listen.

0:47.0

Here's the show.

0:50.0

Amongst philosophers who study dementia, there's this story that gets told over and over again and it's about a woman named Margot.

0:59.0

Margot was a 55 year old woman who suffered from early onset Alzheimer's disease.

1:09.4

She couldn't recognize anyone around her.

1:11.7

She spent her days painting and listening to music. She read

1:15.1

mystery novels too. Often the same book day after day, the mystery always remained

1:20.7

mysterious because she would forget it.

1:24.0

But despite her on this, or maybe even because of it,

1:28.0

Margot was very happy.

1:31.0

The Margot story presents philosophers with this riddle.

1:35.0

Imagine that years ago when Margot was fully competent,

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